Background: Endometriosis is an enigmatic disease, the underlying aetio-pathophysiology of which remains unclear. Endometriosis Phenome and Biobanking Harmonisation Project (EPHect) provides new tools to facilitate comprehensive data analysis to advance endometriosis research.
Aim: To assess the feasibility of implementing the EPHect surgical phenotype data Standard Surgical Form (SSF) into a busy clinical practice.
Design: A prospective observational study
Materials: SSF was completed for 225 women with known or suspected endometriosis.
Results: Mean time for completion of the SSF was 8 minutes (range 2-17 minutes). The main factors which determined the time taken were the severity and distribution of the disease. Intraoperative photos may assist documentation and reduce potential recall errors. Certain aspects of the SSF may need modification to reduce duplication.
Conclusion: This study demonstrates that introducing the SSF is feasible. Widespread adoption of this EPHect tool should be encouraged to enhance global and meaningful endometriosis research.